Continuing my goal to become a Karate Black belt, I worked extremely hard at the discipline and on June 4, 2023, I achieved my goal of becoming a black belt and earning the title of Sensei Luke Savoie. I will continue my growth in the art of Karate with leadership roles that will grow my confidence and my ability to promote a positive lifestyle that comes with being a respected Sensei.
Cerebellar Agenesis - Luke Savoie
Luke Savoie was born missing his Cerebellum but it has not stopped him from achieving goals many thought impossible.
Saturday 30 September 2023
Saturday 17 June 2023
This performance was one where I felt very nervous because I did not have the original soundtrack playing in the background. I wanted to sing this song because my brother is in the military and I pray he will never suffer from PTSD. I changed the last line to sing Canadian Soldier, instead of American soldier for my brother.
Saturday 18 February 2023
My singing teacher wanted me to perform on stage. I felt very nervous doing this but, with her encouragement and my family's encouragement, I did it. I want the soundtrack playing in the background and it did give me more confidence with the music playing along with me singing.
The song is "Between the Roses" by SayWeCanFly
Maybe then you’ll see how nothing stays in tact
And when my life is over maybe you can understand
That I planned everything, but nothing went as planned
It’s nothing personal, I just want you to know
I tried to understand
You tortured me with the silence in your throat
And you tortured me with the stillness in your bones
You kicked the chair from underneath my feet
You must have seen the noose made out of roses that I wore to guarantee
That you couldn’t go, that you wouldn’t leave me all alone
Cause if you did, you’d see my body hanging just above the floor
Beside a note, to tell the world how terrible it was
To fall in love with someone capable of cutting out my tongue,
Of cutting out my, of cutting out my tongue
So did you just forget, or do you really not remember
The bullets that we took so we could stay alive forever
And did you just forget, or do you really not remember
The poison that we drank, so that at least we’d die together
It’s comforting to fall asleep alone
And it’s comforting because it’s all I’ve ever known
If I should die before I wake
I pray to God my soul will find a peaceful place
Between the roses, between the roses
Because the earth is only pretty for so long
Between the roses, between the roses
You were the only one I’ll trust to sing along
To sing between the roses, sing my song
So did you just forget, or do you really not remember
The bullets that we took so we could stay alive forever
And did you just forget, or do you really not remember
The poison that we drank, so that at least we’d die together
As the sun went down, our hearts were heavy
We knew it was time, but I was not ready
To let you go, to say goodbye
To a love I thought would never die
You were quiet as hell and you looked so sad
As I kissed your lips with my regrets
In hopes that maybe we’d pretend
Forever never had to end
La, la, la, la, la
La, la, la, la, la la la la
That maybe we'd pretend
Our hope had died, but our love’s not dead
So grab your black umbrella and make your way down to the graveyard
Where you’ll find the tree to which I tied this rope
And nothing is for certain, that’s the only thing I know
But I’m certain that it’s time for me to go
It’s nothing personal, it simply hurts to know
That I will be alone
Thursday 27 January 2022
My job out of college:
In April 2020, I had an interview with Dollarama in Stittsville. I was a little nervous going to the interview but I was prepared with the help of my job coach, Michelle, from Performance Plus Rehabilitative Care.
My job title is merchandizer. Dollarama is very close to my house which I like since I don't have a driver's licence. I could take the bus but my parents are able to drive me to and from work.
With Covid rules in place, I have to wear a mask during my shifts but that is not a problem.
I have now been with Dollarama for almost two years.
Wednesday 26 January 2022
Karate
I started Karate at Douvris Karate (Kanata, Ontario) in 2019.
I earned my Yellow Belt - August 24, 2019
I earned by Orange Belt - January 25, 2020
I earned my Green Belt - August 29, 2020
My mom was able to take a video of me during my green belt grading. Because of Covid, no one could come in to watch, but my dojo set up a ZOOM link so my parents could watch me.
Thursday 6 February 2020
Music
Music is a big part of my family. My mom and my brothers play guitar and piano. I really enjoy music and I love to sing. I started singing lessons in 2019 as a way to help with my speech and it is a lot more fun that going to speech therapy.
I enjoyed going to singing lessons in person but when COVID hit, I had to do all my singing lessons online. I am glad that singing lessons continued.
In singing lessons I can pick the songs I like. I work on the music with my singing teacher, Diana.
My brother Eric has helped me with learning notes on the piano. I like to try to play songs I know.
I try to use my two hands when playing on the piano but it is not always easy, but I do enjoy trying to pick out songs on the piano.
Friday 26 April 2019
St. Lawrence College - 2019 |
Tuesday 2 January 2018
Cerebellar Agenesis
For more information, follow this link to NORD
https://rarediseases.org/rare-diseases/cerebellar-agenesis/
Monday 1 January 2018
Luke's MRI
This is what a normal brain looks like with a cerebellum:
This is my brain - showing the cavity where the cerebellum should be:
Wednesday 1 November 2017
Luke's official Youtube Channel
Sunday 17 September 2017
College here I come
I am living on my own in residence. At first I thought this would be scary as I never thought I would be living on my own, but I am. I go to my classes, eat in the cafeteria and do my daily living without the help of others. I do have learning specialists who attend classes with me, who scribe and help make sure I accomplish everything I need to, to be successful in college. This has been a huge step in my life and I am very proud of my accomplishments to date.
I am off - the car was packed with my things and I made sure to take my computer with me so I could play my video games when I was not in class or doing homework.
My residence room. I have a nice size room with lots of space for my computer and of course my extra food. The fridge and microwave are great for me to make food when the cafeteria is closed. Especially to make a snack before going to sleep.
I am now a college student and I know my way around the campus.
Thursday 29 June 2017
High School Graduation
June 29, 2017
High school graduation was a real big day for me - I completed the 30 credits necessary to earn my Ontario High School Diploma - I also made the highest mark in my grade 12 World History course and was awarded the School Council award for being one of the most improved students. The award came with a cheque for $300. I worked very hard to achieve this milestone and proved that even though I was born without a cerebellum, it did not stop me from doing what all other students do - earn a high school diploma.